In today’s podcast, Joanna Kolak, researcher from our lab, talks to Dr Daniela Ghio – lecturer from the University of Salford and a Charted Psychologist with interests in digital health across the lifespan and paediatric psychology. Based on the research she was involved in, Daniela tells us about how best to support children and young people in dealing with long-term conditions, such as juvenile idiopathic arthritis and eczema.
Background to the interview:
The research in this podcast were part of bigger projects, research with adolescents with Juvenile Idiopathic Arthritis was supported by National Institute for Health Research (NIHR) Biomedical Research Unit Funding Scheme and the NIHR Manchester Biomedical Research Centre. Aspects of this work were also supported by Arthritis Research UK, including funding for Centre for Epidemiology Versus Arthritis (grant 20380).
The research with children and young people with eczema was supported by the NIHR under its Programme Grants for Applied Research programme (grant ref No RP-PG-0216-20007). Eczema Care Online (ECO) was developed using LifeGuide software, which was partly funded by the NIHR Southampton Biomedical Research Centre (BRC). For more information about the Eczema Care Online Project: https://www.nottingham.ac.uk/eco/ or follow on Twitter @ECO_Eczema
For more information about using the Person Based Approach: https://www.lifeguideonline.org/pba
Research describing developing and testing a complex intervention targeting both healthcare professionals and older patients in primary care is funded from an NIHR Programme Grant for Applied Research, Reference Number RP-PG-0614-20004.
The views expressed are those of the speaker and not necessarily those of the NHS, the NIHR or the Department of Health and Social Care and has no conflicts of interest to declare.
Resources mentioned in this podcast:
Papers referred to in the podcast for further reading:
Ghio, D., Greenwell, K., Muller, I., Roberts, A., McNiven, A., & Santer, M. (in press) Psychosocial needs of adolescents and young adults with eczema: A secondary analysis of qualitative data to inform a behaviour change intervention. British Journal of Health Psychology DOI: 10.1111/bjhp.12467
Ghio, D., Muller, I., Greenwell, K., Roberts, A., McNiven, A., Langan, S. M., & Santer, M. (2019). “It’s like the bad guy in a movie who just doesn’t die”: A qualitative exploration of young people’s adaptation to eczema and implications for self-care. British Journal of Dermatology. DOI: 10.1111/bjd.18046
Ghio, D., Thomson, W., Calam, R., Ulph, F., & Baildam, E. M. (2018). The prioritization of symptom beliefs over illness beliefs: the development and validation of the Pain Perception Questionnaire for Young People. British Journal of Health Psychology, 23(1), 68-87. DOI: 10.1111/bjhp.12275
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